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Scottish LDN Petition
The Scottish Petition closed
on 22nd Nov 2009, with 1,201
signatures gathered in just one month.
Bob Thomson, Celia Danks and
Margaret Anne Gachagan (LDNNow
You can view the video on YouTube http://bit.ly/SPLDNm1v1
Or see it on the Scottish
Parliament site.
LDNNow Scotland presents to the Scottish Parliament –
Video -wind it forward to 39 minutes for the starting point. It is 35 minutes
long.
The LDN interview segment
from the Holyrood Hightlights video -
http://www.scottish.parliament.uk/nmCentre/video/index.htm
Quick link for posting - http://bit.ly/SPLDNvid2
It's the video under the
caption ‘Holyrood
Highlights Weekly - 03/12/09'
LDN bit runs from 16:00-18:00 ish
http://www.scottish.parliament.uk/business/petitions/docs/PE1296.htm
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Open
Petitions - Petition PE1296 |
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Petition by Robert Thomson
on behalf of LDN Now Scotland calling on the Scottish Parliament to urge the Scottish
Government to make Low Dose Naltrexone readily available on the NHS to
auto-immune disease sufferers as well as other conditions not classified as
auto-immune such as HIV/AIDS, cancer and fertility, in each NHS board area
thereby reducing the danger of sufferers having to access riskier
alternatives and also incurring higher costs by purchasing the drug through
private medical providers and to provide guidance to all GPs on LDN protocol
and require them to collect LDN clinical data. |
Submission from Bob Thomson
http://www.scottish.parliament.uk/business/petitions/pdfs/PE1296.pdf
Briefing for the Public Petitions Committee
http://www.scottish.parliament.uk/business/research/petitionBriefings/pb-09/PB09-1296.pdf
Presentation Summary as at 01st Dec 2009
1 December 2009 :
The Committee took evidence from Bob Thomson, Celia Danks and Margaret Anne
Gachagan and agreed to write to the Scottish Government, Scottish Medicines
Consortium, NHS Quality Improvement Scotland,a selection of NHS Boards (Greater
Glasgow and Clyde, Lanarkshire and Tayside), the Essential Health Clinic, LDN
Research Trust, MS Society, Cancer Research UK, Alzheimer's Society, National
Association for Colitis and Crohn's Disease, Association of the British
Pharmaceutical Industry, the Royal Pharmaceutical Society of Great Britain, the
National Institute for Clinical Excellence and Penn State University (USA)
seeking responses to the points raised in the petition and during the
discussion.
Transcript
of Presentation to the Public Petitions Committee
http://www.scottish.parliament.uk/s3/committees/petitions/or-09/pu09-1702.htm#Col2178
Current
Position
The Public Petitions
Committee has written to various bodies, seeking responses by 06th
Jan 2010. Responses will be forwarded to Bob Thompson.
The Petition is still
provisionally scheduled to be considered by the Committee on 2 March 2010 and Bob is required to make any response to
responses received before 10th Feb 2010.
Responses already received:
NICE 07th Dec 2009
NHS, Lanarkshire 15th Dec 2009
Information provided by
Stephen Dickson Pharmacist 14th
Dec 2009
NHS
Tayside 23rd Dec 2009
Primary
and Community Care Directorate 24th
Dec 2009
Royal
Pharmaceutical Society 29th Dec 2009
NHS Greater
Glasgow and Clyde 05th
Jan 2010
Cancer
Research UK 06th Jan
2010
Dr Bob
Lawrence 08th Jan 2010
Professor
Jill Smith 08th Jan 2010
Professor
Jill Smith Trial Results 2007
National
Association for Colitis and Chron’s Disease
08th Jan 2010
Dr Tom
Gilhooly 11th Jan 2010
Alzheimer
Scotland 12th Jan 2010
NHS
Quality Improvement Scotland 12th
Jan 2010
MS
Society Scotland 13th
Jan 2010
02nd
March 2010
The Scottish Parliament Petitions
Committee met on 02nd March to consider the responses received. They
decided to keep the Petition open and write to the Dept. of Health, and the
Scottish Government..
See this link:
Written Questions for Petition 1296
PUBLIC PETITIONS
COMMITTEE CONSIDERATION OF PE1296:
QUESTIONS ARISING FROM COMMITTEE MEETINGS
(See ‘Written submissions’ for responses)
TUESDAY 2 MARCH 2010—
Scottish Government—
- Given that the vast majority of the respondents to the petition did
not wish to take position on the virtues of LDN in the absence of clinical
tests, will it make representations to the Medicines and Healthcare
Products Regulatory Agency asking it to assess the safety and efficacy of
LDN? If not, why not?
- Will it ask the Scottish Intercollegiate Guidelines Network and
Scottish Medicines Consortium to produce guidance on the use of unlicensed
LDN? If not, will it suggest it as a topic? If not, why not?
- How many NHS prescriptions for LDN have been issued?
- In what way will the planned guidance on a variety of
medicines-related issues address the aim of the petitions?
- In light of the submissions from Dr Bob Lawrence (PE1296/M) and
Professor Jill Smith (PE1296/N) will it initiate a trial to measure the
effectiveness of LDN and collect data?
- Will it ask the Chief Scientist Office to fund research on LDN?
- What is its answer to the points/question made in the 2nd and 3rd
paragraphs of the petitioner’s submission (PE1296/T)?
Department of Health—
- What is your response to the issues raised in this petition and, in
particular, as it would appear that the vast majority of the respondents
to the petition did not wish to take position on the virtues of LDN in the
absence of clinical tests, will you make representations to the Medicines
and Healthcare Products Regulatory Agency asking it to assess the
safety and efficacy of LDN? If not, why not?
Photos:
Bob Thompson, Celia Danks, and
Margaret Anne Gachagan at Scottish Parliament 01st Dec 2009
Wherever you are in the World,
please support the Australian and Canadian Petitions:-
Committed to saving
lives using LDN
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